It’s been eons since I’ve written. I had a bad bout of depression and insomnia. Not saying that either is gone, but now I’m on prednisone for another intractable migraine and I just hate how it makes me feel and I wanna vent.
I feel like my legs aren’t part of my body. The past few days they’ve just been moving of their own accord. Maybe like a cross between myoclonic jerks and restless leg syndrome? I’m not sure. I had nine medical appointments last week and I’m depleted.
My heart rate is very low for me (93 BPM resting), but it feels like it’s so fast. I have postural orthostatic tachycardia syndrome, so usually my heart rate is high and my blood pressure is low.
I got a lot of sleep last night and when I woke up, I whispered to my husband, “I feel better. Don’t tell anyone!” He said he could tell that I felt better. But then I took the prednisone and I’m back in the PredniZone.
I want to do things, but my body isn’t cooperating. I managed to wash some dishes and fold some laundry before the myoclonic jerks kicked in again. I want to take a shower, but that’s such a daunting task. Sigh.
The upside: I’ve been fully-vaccinated. I got my first dose of the COVID-19 vaccine in January. My husband is scheduled to get his first dose later this month. I started a new medication that I hope will help with the “spells” I have. (I had another abnormal EEG last week)
For now, I’ll try to calm myself with some music or entice a cat to sit on my lap. The cats really help! I’m so lucky that they are in my life. And that my husband just brought home Eggo waffles. I’m like “Eleven” from Stranger Things and live off of them.